VIDEO:A LETTER FROM ACTOR BORIS KODJOE AND NICOLE PARKER
Actor Boris Kodjoe and his wife Nicole Ari Parker are trying to raise $1.88 million dollars for children with Spina Bifida,a cause that is close to the Kodjoe’s hearts as their daughter Sophie,3, has Spina Bifida:
We hope you are well. We are writing this letter to share with you a most personal issue and ask for your help. As some of you already heard, our little Sophie was diagnosed at birth with Spina Bifida, the most common birth defect in the US, affecting the brain and/or spine in an average of eight babies a day. Degrees of severity vary from quadriplegic children with major brain damage and spinal injuries to cases of neurogenic bladders or even lesser issues.
We were blessed with a miracle child and spared of the more severe symptoms, but Sophie’s spastic bladder still forces us to catheterize her every three hours, day and night, to avoid pressure build up in her bladder and urine backflow into her kidneys. But frequent catheterization causes urinary tract infections, which are then battled with strong antibiotics, which in turn attack stomach flora and cellular balance, cause bowel issues, and that leads to more infections.
It’s a never ending cycle and the prognosis from specialists all over the world is a life long dependency on catheterization and diapers, unless we’d agree to a bladder augmentation, which is quite risky and not a way we want her to live. While being a simple body function for able-bodied individuals, these activities may take hours for children with Spina Bifida.
So after educating ourselves, studying hundreds of domestic and international cases, and researching alternative and traditional methods, our friend Jim Okula at the Spina Bifida Association of GA called us because he came across Dr Xiao from China. Xiao is the first and only person in the world who has developed a procedure of surgically rerouting nerves from the legs to the bladder, providing a new pathway for autonomic stimulation of the bladder, therefore teaching the bladder to empty itself over time.
WATCH BORIS KODJOE ON THE WENDY WILLIAMS[ aired on 8/19/08] SHOW AS HE TALKS ABOUT HIS DAUGHTER SOPHIE’S CONDITION:
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