Comments on: SOPHIE KODJOE’S STORY:LIVING WITH SPINA BIFIDA

By: sylvia deleon

sylvia deleon — Wed, 02 Mar 2011 03:30:58 +0000

Hi boris and nicole my name is sylvia i am 45 yrs old n i have spinia bifida. i have the same type as your lil miracle. i was born n 1966 and in that era they didnt have all the technology they do now. but i remember as a child all the hospital visits and surgery’s and the fear of everyone poking and proding and the strangers looking at me. along with the strange side effects from the meds and the halusinations due to the meds i was a mess i aslo was told i would never have children but by grace of God i have 2 very healthy miracle daughters of my own. i live as a normal life i graduated high school and i am now attending nursing school you would not know i have it unless i tell you. So keep the faith because he (God) is the only one that can dictate what your lil one can and can not do. I thank Him everyday that my precious mother taught me that she was just there to show me the way to his kingdom and to lift it all up to him.

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By: Upendraya

Upendraya — Tue, 19 Oct 2010 01:20:29 +0000

Super-Duper site! I am loving it!! Will come back again – taking you feeds also, Thanks.

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By: bubbles81

bubbles81 — Sat, 12 Jun 2010 04:07:48 +0000

hi nicole and boris family. i just wanted to say god bless u and urs. u are wonderful people and i believe even more wonderful parents and nicole do not take the sole blame for your daughters condition everything happens for a reason please be blessed and continue doing wat ur doin educating women on what to do to prevent spina bifida. your a beautiful woman much love and respect to you and your family.(:

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By: Judd

Judd — Thu, 30 Jul 2009 18:42:12 +0000

This family perhaps is one of the best looking in the celebrity world. They appear to be a loving family..OMG these kids are so cute!

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By: CP

CP — Mon, 13 Jul 2009 14:48:29 +0000

FYI:

Spina bifida is best prevented by taking 400 micrograms (mcg) of folic acid every day. Studies have shown that if all women who could become pregnant were to take a multivitamin with the B-vitamin folic acid, the risk of neural tube defects could be reduced by up to 70%.

Since half of all pregnancies in the United States are unplanned, women of childbearing age – even if they are not currently planning to get pregnant – should take 400 micrograms (mcg) of folic acid every day to reduce their risk of having a child with Spina Bifida.

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By: paris harper

paris harper — Wed, 17 Jun 2009 05:03:12 +0000

wow,i know that god will give you the grace to get through this.your story is very inspirational and encouraging.i can empathize with you both because, my husband and i are the parents of 4 children,ages 11,10,9,&1 and 2 of our children have spinabifida.my 10 year old,which is our only son,and my 1 year old.there levels are both L-4″s,but strangely,our daughter diagnosis is that she will never walk. our children also have toileting issues and battles with monthly urinary tract infections.oh, and not to mention the constant visits to the hospital and countless numbers of surgeries that they have had on there hips,legs and feet.oh,and how can we forget the shunt replacements.my husband and i are very encourage by your story,all we can do is pray that god will continue to give you and your husband the grace to go through it, and we ask that you all wil do the same for us.

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By: Qiana (NYC)

Qiana (NYC) — Mon, 06 Apr 2009 07:23:31 +0000

My heart and prayers goes out to them. I had no idea they were going through this. I pray that God will heal little Sophie’s body. It breaks my heart to see sick children.

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By: Felicia

Felicia — Fri, 20 Mar 2009 01:28:37 +0000

I have never heard of Spina Bifida but I truly appreciate Boris sharing their story and may god continue to bless them and continue to allow Sophie to be strong and happy little girl.

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By: Nakaria

Nakaria — Mon, 19 Jan 2009 00:15:46 +0000

Tthis is such a touching story. I have never heard of such dieas until Spohie. It’s a beautiful thing that she is able to live her life as a normal kid and her parents so involved and open with her situation. Cute family, and i wish the best!!!!!!!

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By: lamarreo bedford

lamarreo bedford — Sun, 18 Jan 2009 18:44:56 +0000

your story will help people to understand what me and sophie have to deal with.becouse i was born with spinalbifada.and its hard sometimes.but with god and the love from my family.i made it throught.and sophie is going to be just fine.she is going to make it just like i did.

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