HELP SAVE ADEJA JOHNSON
Adeja Johnson is pictured with her mom and dad
What: Adéja Johnson’s Stem Cell Fund
Who: Adéja Johnson is a 10-year-old who suffers from sickle cell disease. She is currently in the process of receiving a life-saving stem cell transplant at Duke University Medical Center.
Piedmont Health Services and Sickle Cell Agency is raising money for Adéja Johnson’s medical expenses. Tax deductible contributions can be made at www.piedmonthealthservices.org or by calling 886-2437 or 274-1507 .
Sickle cell disease is a genetic condition that causes red blood cells to become sickle-shaped rather than round. The sickle cells tend to clump together in blood vessels, and the disease can cause pain, infections and serious organ damage. According to the National Institutes of Health, about 70,000 people in the United States are affected, mostly African-Americans. News-record.com
Website: www.piedmonthealthservices.org
Adeja is so cute….a lot of kids have sickle cell and it is so sad….
Praying for this sweet baby. My sister died about four years ago due to complications from sickle cell. She would be 54 this year, and its heartbreaking to remember all the pain she went through for a big part of her life. I can remember being a kid and doing my homework in the hospital cafeteria because she was in a “crisis” and we would be there for days. It’s a hard disease. I will definitely do what I can.
Thank you for posting BCK. My 11yr old daughter has Sickle Cell. So I know the struggle. I will speard the word.
MY DAUGHTER ALSO HAS THIS DISEASE, FOR HER, YOU BARELY WOULD EVEN KNOW SHE HAS IT AND I THANK GOD FOR THAT. I HOPE THINGS TURN OUT WELL FOR THIS FAMILY.
Bless her heart
I will be praying for her, im 25 years old and suffer with Sickle Cell, thank God i have all my organs, but the pain crisis are so bad i stay in the hospital, Im praying for the best for this Family and this disease needs alot of Attention, its great spreading the word any way we can:):):)
She is a beautiful little girl. I am a 31 year old woman with sickle cell. For 28 years I was told i had the trait while experiencing crisis and in and out of hospitals. They were prescribing me iron pills. I could have went into iron overload. It is very painful. My aunt died at 41 and my friend died at 18( 2 days after hi high-school graduation). God has definately been by my side. It definately needs to be more awareness on this disease. We will definately keep her in our prayers.
They did the same thing to my daughter. Thank God we left that city before she was 4 and moved to a larger city and different state where they were more aware of the disease. I know she wouldn’t have been here today had we remained in that town. I wonder if they are in touch with all of the help for SC since they are asking for donations.
I have it as well…but, I’m able to ride on a road bike for long distances: 20-30 miles now. But i suffered bad as a child boy did I suffer. But for Adeja NEVER NEVER put her under a stressful situation,thats #1 trigger for crisis.Lots of fluid,whole foods,plenty of rest, plenty. Hope the transplant works out fine.
I have sickle cell too… I’m 19 now but I just wanted to say people who have it like Pete said suffer a lot there is no doubt about that physically and emotionally. I hope for the sake of this little girl her operation goes well. This thing that some of us have isn’t fun it limits you makes you think twice about doing things in your childhood when you just wanna be a carefree kid. I’m not complaining merely stating facts I wanna spread the word about how some of us feel and think I hope this girl gets better though.
baby you are one of a kind very preety and i pray for you and your parents strength god is always by your side and he will comfort youy all you hang in there precious you are going to get pass it all i just know it love you all
Just a brief note on some information that may be helpful for some, especially those of us with ethnically diverse backgrounds. Did you know that the blood left in the umbilical cord/placenta has been proven to treat over 70 blood diseases and cancer. It also has been used to treat and cure a patient that suffered with sickle cell anemia, Keone Penn.
Look up Keone Penn, Keone Penn’s Law and go to the website for CORD:USE Cord Blood Bank….
The National Marrow Donor Program is building a national inventory of ethnically diverse, viable, transplantable cord blood units for patients in need. The cord blood is collected from mothers who volunteer to donate what we call after birth, instead of throwing it away as medical waste. Various cord blood donation programs exist across the US and have different collection methods.
If you are having a baby, check with your hospital to see if they have a program in place for umbilical cord blood donation.
People, we need to get the word out. There are many of us that die due to the lack of a bone marrow match when there may be an alternative for some.
However, only your physician can determine if cord blood can be a life saving therapy for you.
Get educated.